Our stories

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Genetic Alliance Australia 2022 Forum
20 September 2022

The GeneEQUAL team was honoured to be invited to speak at the Genetic Alliance Australia 2022 Forum at the NSW Parliament on September 20th. Genetic Alliance Australia’s mission is to improve support for those impacted by genetic conditions.

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Neurodevelopmental and Behavioural Society of Australasia Conference
25 August 2022

The GeneEQUAL team co-presented at the Neurodevelopmental and Behavioural Society of Australasia Conference in August 2022.

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Second co-production workshop with SAS
2 December 2022

News and photos from the second co-production workshop with Self-Advocacy Sydney (SAS).

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New resources available!
14 March 2023

The GeneEQUAL team have been busy.

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European Society of Human Genetics Conference
11 June 2022

The GeneEQUAL team talked about what they have learnt from the study at the European Society of Human Genetics Conference in June 2022 in Vienna. 

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Human Genetics Society of Australasia Conference
6 November 2022

The GeneEQUAL team presented in at the national Human Genetics Society of Australasia Conference in November 2022.

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Co-production workshop with Self Advocacy Sydney
28 October 2022

Members of the GeneEQUAL team travelled to Self Advocacy Sydney’s office for a co-production workshop

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A small story
29 November 2022

I just wanted to share a small story that reminded me how important our work is. 

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Article on grant funding
25 October 2022

UNSW wrote this article about our NHMRC GeneEQUAL grant.

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Article on inclusive research
19 August 2022

UNSW wrote this article about Iva and Julie’s inclusive research work including the GeneEQUAL project.

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January 2022 newsletter
30 January 2022

The GeneEQUAL newsletter that came out in January 2022.

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December 2021 newsletter
30 December 2021

The GeneEQUAL newsletter that came out in December 2021.

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March 2022 newsletter
30 March 2022

The GeneEQUAL newsletter that came out in March 2022.

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October 2021 newsletter
30 October 2021

The GeneEQUAL newsletter that came out in October 2021.

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May 2022 newsletter
30 May 2022

The GeneEQUAL newsletter that came out in May 2022.

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December 2022 newsletter
30 December 2022

The GeneEQUAL newsletter that came out in December 2022.

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Julie Loblinzk OAM
18 April 2023

Julie Loblinzk received the Medal of the Order of Australia (OAM) for her services to people with people with disability.

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Third co-production workshop with Self Advocacy Sydney
21 April 2023

The GeneEQUAL team met with 15 people with intellectual disability and 5 support people at SAS.

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Genetic Counselling Educational Workshop
28 March 2023

A half day workshop with genetic counsellors at Randwick.

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Co-production workshop in Wagga Wagga
12 December 2022

Tthe GeneEQUAL team went to get feedback from people with intellectual disability in Wagga Wagga.

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Australian Genomics Education Network Australasia meeting
17 July 2023

Emma presented on how co-production is so important in making educational resources about genomics and teaching health care workers.

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European Society of Human Genetics
10 June 2023

The GeneEQUAL team was invited to talk about the importance of language in genetics and why co-production is so important in genetics education.

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Inclusive Practice Awards
10 August 2023

GeneEQUAL announce our Inclusive Practice Awards

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Artwork by Mark Podmenik
21 August 2023

GeneEQUAL recently commissioned three pieces by Mark Podmenik.

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Dr Emma Palmer awarded 2023 Jeanette Moss Award
3 October 2023

Congradulations Emma!

Emma has won the Jeanette Moss Award.

The GeneEQUAL team is very proud of Emma and all the work she does.

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GeneEQUAL Team webinar on co-production
3 October 2023

Our GeneEQUAL Team was invited to speak at UNSW Disability Innovation Institute about our research.

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New study with families and support worker recruitment
31 October 2023

We want to talk to families and support people.

We want to learn about your experiences with genetic health care and health care choices.

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New study for health care professionals about GeneEQUAL Toolkit
6 November 2023

We want to hear from health care workers.

Tell us what you think about the GeneEQUAL Toolkit.

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New study for people with intellectual disability
20 November 2023

We want to talk to people with intellectual disability.

We want to talk to them about genetic health care.

We want to make genetic health care better for people with intellectual disability.

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‘They treat you like an it’: people with intellectual disability on seeing medical professionals
20 November 2023

The GeneEQUAL team has published an article in The Conversation.

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Self-advocacy: children with disability
21 November 2023

Article on teaching self-advocacy skills.

Two GeneEQUAL team members, Sierra Angela Willow and Sarah Hayes, collaborated on this article.

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Merry Christmas!
11 December 2023

Merry Christmas from the GeneEQUAL Team!

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Newsletter August 2023
16 December 2023

Please read our newsletter for August 2023. We want to tell you about all the great things the GeneEQUAL team is doing. Download our newsletter below

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October 2023 newsletter
16 December 2023

Please read our latest Newsletter. We want to tell you about the latest news coming from the GeneEQUAL team.

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December 2023 Newsletter
18 December 2023

Please read our latest Newsletter. We want to tell you about the latest news coming from the GeneEQUAL team Click here for the Easy Read

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Informed consent is important in health care for people with intellectual disability
19 February 2024

This is an on health care for people with intellectual disability.
The authors read GeneEQUAL’s article on informed consent in health care.
They agreed with what we had to say about informed consent for people with intellectual disability in health care.

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Parent/carer of a student or young person with intellectual disability
11 June 2024

Are you a parent/carer of a student or a young adult with intellectual disability living in Australia?

We want to talk to you!

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