
This page is about
- how we work at GeneEQUAL

How we work is about
- the ways we do things to reach our goals

We are person-centred

The experiences of people with intellectual disability
- guide our research

We work to each other’s
- strengths and preferences

What works best for each of us
- can be different
That is great!

Our work spaces are
- safe
- welcoming

Everyone is welcome to talk about their
- experiences
- ideas
- opinions
in a positive way

We use people first language

We say
- a person with intellectual disability

We do not say
- disabled
- impaired

We say
- intellectual disability
and
- people with intellectual disability

Abbreviations are short forms of
- words
- phrases

We do not use abbreviations for disability such as
- ID
- PWID

We show respect and understanding

Each of our
- experiences
- communities
- ways of thinking
help us to think differently

We show each other
- it is good to be different

We work to each other’s strengths
We help each other to improve

We do not focus on the things
- that people find difficult to do

We try not to use
- difficult words
- abbreviations

We explain difficult words
- if we need to use them

This helps everyone to
- take part in the conversation

Education about genetic health care
- is important to us

We want people with intellectual disability to
- feel confident
- believe in their right
to make their own health care decisions

We support people with intellectual disability to
- understand their right to make genetic health care decisions

- make decisions about genetic health care

- feel more confident to be part of health care decisions

We give information that is
- accessible

- based on research

We share information in many ways

We explore
- new research

- what research says works best

- laws

- policies

A policy is the instructions that
- tell people how to follow a law

We work together with
- our team
- other groups

We work together with many different people

We celebrate each other’s
- strengths
- skills

When we work together like this
- our strengths get better and better

We work together with health care workers
- to show respect to people with intellectual disability

We work together with teachers

Teachers can make sure students with intellectual disability
- learn to make choices and decisions

- have many chances to make choices and decisions
- feel confident to make choices and decisions

We are brave

We are not afraid to
• stand up for what is right

We ask the world to show more
- respect
- inclusion
- accessibility

We always want to learn

We welcome new ways of doing research