This page is about
- how we work at GeneEQUAL
How we work is about
- the ways we do things to reach our goals
We are person-centred
The experiences of people with intellectual disability
- guide our research
We work to each other’s
- strengths and preferences
What works best for each of us
- can be different
That is great!
Our work spaces are
- safe
- welcoming
Everyone is welcome to talk about their
- experiences
- ideas
- opinions
in a positive way
We use people first language
We say
- a person with intellectual disability
We do not say
- disabled
- impaired
We say
- intellectual disability
and
- people with intellectual disability
Abbreviations are short forms of
- words
- phrases
We do not use abbreviations for disability such as
- ID
- PWID
We show respect and understanding
Each of our
- experiences
- communities
- ways of thinking
help us to think differently
We show each other
- it is good to be different
We work to each other’s strengths
We help each other to improve
We do not focus on the things
- that people find difficult to do
We try not to use
- difficult words
- abbreviations
We explain difficult words
- if we need to use them
This helps everyone to
- take part in the conversation
Education about genetic health care
- is important to us
We want people with intellectual disability to
- feel confident
- believe in their right
to make their own health care decisions
We support people with intellectual disability to
- understand their right to make genetic health care decisions
- make decisions about genetic health care
- feel more confident to be part of health care decisions
We give information that is
- accessible
- based on research
We share information in many ways
We explore
- new research
- what research says works best
- laws
- policies
A policy is the instructions that
- tell people how to follow a law
We work together with
- our team
- other groups
We work together with many different people
We celebrate each other’s
- strengths
- skills
When we work together like this
- our strengths get better and better
We work together with health care workers
- to show respect to people with intellectual disability
We work together with teachers
Teachers can make sure students with intellectual disability
- learn to make choices and decisions
- have many chances to make choices and decisions
- feel confident to make choices and decisions
We are brave
We are not afraid to
• stand up for what is right
We ask the world to show more
- respect
- inclusion
- accessibility
We always want to learn
We welcome new ways of doing research