Our resources

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Report of the GeneEQUAL study
3 March 2023

This is the Easy Read Report of the GeneEQUAL study findings.   It shares: The study was funded by NSW Ministry of Health.

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Experiences of genetic testing and medicine
10 March 2023

Published December 9 2021 in Genetics in Medicine Authors: Iva Strnadová, Suzanne M. Nevin, Jackie Leach Scully and Elizabeth E. Palmer The GeneEQUAL team looked at what other people said about the experiences of people with intellectual disability who had seen a genetic health care team.  They found that people with intellectual disability have not […]

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Health care choices for people with intellectual disability
11 December 2023

We are excited to share our new research article. It is about informed consent for health care. Informed consent means having information to make health care choices. Our article was published in a medical magazine. We hope lots of health care workers read it. We think people with intellectual disability must get with health care […]

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The GeneEQUAL Toolkit Final Report
2 February 2024

This booklet is about the GeneEQUAL Toolkit and what think about it. This booklet is also about what people say You can find out more on the Centre for Genetics Education Website Please click the link below to the PDF

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“I am not a number!”
14 March 2023

Published January 20 2023 in European Journal of Human Genetics Authors: Iva Strnadová, Julie Loblinzk, Jackie Leach Scully, Joanne Danker, Michelle Tso, Karen-Maia Jackaman, Manjekah Dunn, Sierra Angelina Willow, Skie Sarfaraz, Vanessa Fitzgerald, Jackie Boyle and Elizabeth Emma Palmer The GeneEQUAL team share how people with intellectual disability have experienced genetic health care. They suggest some ways to make genetic health care better. The paper is on […]

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The need for co-healthcare with people with intellectual disability
16 February 2024

We are excited to share our new research article. It was published in a medical magazine. It is about how health care workers do not always give good health care to people with intellectual disability. We think that health care workers need to learn how to give good health care.  We think that people with […]

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Genetic Sounds podcast
1 June 2023

In this podcast Iva and Emma talk about the GeneEQUAL project and why it is important.

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Our co-production videos
1 June 2023

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GeneEQUAL toolkit
17 March 2023

The GeneEQUAL team has made a toolkit for health professionals. This includes advice on how to do health care that is The Educational Package was co-designed with people with intellectual disability and health professionals. It includes   Please have a look and share with your health professionals.   If you are a health professional, please let us […]

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