“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare
Published January 20 2023 in European Journal of Human Genetics
Authors: Iva Strnadová, Julie Loblinzk, Jackie Leach Scully, Joanne Danker, Michelle Tso, Karen-Maia Jackaman, Manjekah Dunn, Sierra Angelina Willow, Skie Sarfaraz, Vanessa Fitzgerald, Jackie Boyle and Elizabeth Emma Palmer
The GeneEQUAL team share how people with intellectual disability have experienced genetic health care. They suggest some ways to make genetic health care better.
The paper is on a website that is seen by health professionals all over the world!