On the 28th of October 2022, members of the GeneEQUAL team (Skie, Julie, Iva, Jackie and Emma) travelled to Self Advocacy Sydney’s office in Blacktown for a co-production workshop. We looked together at resources to support people with intellectual disability access and be prepared for clinical genetics appointments in NSW. These resources will also help train health professionals to deliver respectful and equitable care.
This is part of a project already funded by NSW Health to address key gaps identified in our interviews and focus groups with people with intellectual disability and their support persons.
The workshop participants were amazingly generous with great feedback. We are so grateful for their time and enthusiasm for the project. As one participant said: “What you are doing makes a big difference”.
We are so proud to work with SAS as partners on our research. Thank you to all the workshop participants and the SAS team.