Attention health professionals – Want to better incorporate our resources into your practice?
1. Sign up to be a GeneEQUAL Champion
We need people like YOU to advocate and share our resources with your colleagues, patients and communities. All you need to be is someone who is excited to share our resources with their colleagues, patients and communities.
2. Already a GeneEQUAL Champion? Order printed version of our resources
To request printed versions of our booklets and toolkits for your patients or staff, simply fill out the form below after you have signed up as an Champion. Let us know which resources you need and where to send them!
These are some of our incredible GeneEQUAL Champions
Would you like to see your name here? Complete our form and become a GeneEQUAL Champion!
Name
Where they are based
Suzanna Lindsey-Temple
Liverpool Hospital
Ritika Anand
University of New South Wales
Sarah Schenscher
Western Australia
GeneEQUAL Publication Update
The GeneEQUAL team are proud to share our latest open access publication in the European Journal of Human Genetics:
“It was up to me to be curious”: perceptions and experiences of students with intellectual disability on genetics and health education.
Led by Jennifer Hansen, this study explores how students with intellectual disability experience learning about genetics and health at school.
Key findings include:
• Many students reported limited or no teaching about genetics • Health literacy was not consistently addressed • Students felt underprepared to make informed healthcare decisions • Participants identified practical recommendations to improve education
The findings highlight the importance of accessible, inclusive approaches to genetics and health education, and the value of incorporating student perspectives into curriculum design and policy discussions.
