The GeneEQUAL team are proud to share our latest open access publication in the European Journal of Human Genetics:
“It was up to me to be curious”: perceptions and experiences of students with intellectual disability on genetics and health education.
Led by Jennifer Hansen, this study explores how students with intellectual disability experience learning about genetics and health at school.
Key findings include:
• Many students reported limited or no teaching about genetics • Health literacy was not consistently addressed • Students felt underprepared to make informed healthcare decisions • Participants identified practical recommendations to improve education
The findings highlight the importance of accessible, inclusive approaches to genetics and health education, and the value of incorporating student perspectives into curriculum design and policy discussions.
GeneEQUAL Schools: New study for school leaders with experience in supporting students with intellectual disability
The GeneEQUAL team at UNSW is seeking school leaders for important research on health literacy education for students with intellectual disability.
Are you a….
Principal, Deputy/Assistant Principal
Curriculum Coordinator
Special Education Leader
Head of Department
Learning Support Coordinator
Other School Leader
Your insights could help shape best practices for inclusive health education. One very short demographic questionnaire and an online or face-to-face interview – flexible timing & location. We have UNSW ethics approval to recruit via social media, professional networks and organisations, and snowballing.
This research addresses a critical gap in educational practice and could benefit countless students.
