GeneEQUAL Schools: New study for school leaders with experience in supporting students with intellectual disability 

The GeneEQUAL team at UNSW is seeking school leaders for important research on health literacy education for students with intellectual disability. 

Are you a…. 

  • Principal, Deputy/Assistant Principal 
  • Curriculum Coordinator  
  • Special Education Leader 
  • Head of Department  
  • Learning Support Coordinator 
  • Other School Leader 

Your insights could help shape best practices for inclusive health education. One very short demographic questionnaire and an online or face-to-face interview – flexible timing & location. We have UNSW ethics approval to recruit via social media, professional networks and organisations, and snowballing. 

This research addresses a critical gap in educational practice and could benefit countless students. 

Interested? Contact the GeneEQUAL team on   

Claudia Pantoja 

0478911808 

c.pantoja_mardones@student.unsw.edu.au 

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GeneEQUAL Schools: New study for siblings of a young person with intellectual disability

Are you a brother or sister of a student or a young adult with intellectual disability living in Australia?

We want to know:

  • What are your thoughts on providing genetics and health education to your brother or sister?
  • What kinds of support in learning about genetic content do you find most helpful for your brother and sister?

If you are interested please contact

Kaitlyn Delaney

0411 877 430

kaitlyn.delaney@student.unsw.edu.au

Jennifer Hansen

0400 370 392

jennifer.hansen@unsw.edu.au

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Informed consent is important in health care for people with intellectual disability

This is an article written by a team of three people, including a co-researcher.

Johnathon Ding and his team read our GeneEQUAL article on informed consent in health care.

Johnathon Ding and his team thought our article was important in improving health care for people with intellectual disability.

Read what Johnathon Ding and his team said about our GeneEQUAL article on informed consent in health care.

Click the link below.

It is up to healthcare professionals to talk to us in a way that we can understand: informed consent processes in people with an intellectual disability

‘They treat you like an it’: people with intellectual disability on seeing medical professionals

The GeneEQUAL team has published an article in The Conversation.

This article is about

  • GeneEQUAL’s last project
  • what people with intellectual disability told us
  • the resources we made
  • the importance of the voice of people with intellectual disability in health care

The Conversation Article Online