Publication: Experiences of genetic testing and genetic medicine
Published December 9 2021 in Genetics in Medicine
Authors: Iva Strnadová, Suzanne M. Nevin, Jackie Leach Scully and Elizabeth E. Palmer
The GeneEQUAL team looked at what other people said about the experiences of people with intellectual disability who had seen a genetic health care team.
They found that people with intellectual disability have not been properly listened to.
This study led us to start the GeneEQUAL project.
