GeneEQUAL made Easy Read booklets to show Millie's journey with genetic health care.
Millie is a made-up person.
This means the story is pretend but based on people's real experiences.
This picture shows Millie's genetic health care journey.
Millie goes to see her doctor.
Millie decides she wants to
- find out more about genetic testing.
Millie decides she wants to
- get a genetic text.
Millie sees a specialist.
They talk about genetic testing.
Millie waits for the result.
She gets support while waiting.
Millie gets her genetic test result with
- the specialist
- her support person.
You can follow Millie’s genetic health journey through the Easy Read booklets.
This can help you learn about what a genetic health care journey might look like.
GeneEQUAL co-produced these Easy Read booklets with
- People with intellectual disability
- Health care workersl
People with intellectual disability and health care workers can use these booklets to learn about Millie’s genetic testing journey and informed consent.
There are 3 booklets.
- Millie’s genetic health care story: Before a genetic test.
- Millie’s genetic health care story: Getting a genetic test.
- Making a choice about a genetic test.
You can download the booklets for free.
These booklets are part of the GeneEQUAL Choices Project.
Millie’s genetic health care story: Before a genetic test
This booklet is about Millie seeing her doctor.
They talk about
- Millie’s health and
- genetic health care.
This booklet is useful when someone
- is starting to think about genetic testing
- wants to know more about the process
- is referred to see a specialist to talk about genetic testing.
Millie’s genetic health care story: Getting a genetic test
This booklet is about Millie meeting a specialist.
- to talk about genetic testing.
This booklet is useful when someone
- is seeing a specialist to order genetic testing
- wants to know what genetic testing is like
- decides they want to get a genetic test.
Millie’s genetic health care story: Making a choice about a genetic test
This booklet is about making a choice about a genetic test.
It is about important things you need to know
- to make a choice about getting a genetic test.
This is called informed consent.
This booklet is useful when someone
- is making their own choice about genetic testing
- is seeing a specialist to decide about genetic testing.
We also have an Easy Read decision aid tool
It is a booklet you can fill in together
- with your health care worker
- to help you make a choice about genetic testing.
Millie’s genetic health care story: Making a choice about a genetic test
This booklet is about making a choice about a genetic test.
It is about important things you need to know
- to make a choice about getting a genetic test.
This is called informed consent.
This booklet is useful when someone
- is making their own choice about genetic testing
- is seeing a specialist to decide about genetic testing.
This decision aid tool is part of the GeneEQUAL Choices Project.