This project is about
- helping people with intellectual disability
- understand genetic health care.
This can help people make a choice about
- whether they want a genetic test.
This is important for informed consent for genetic testing.
Informed consent means people
- understand genetic testing with support and
- make a choice that is right for them.
NSW Health gave us money to support this project.
The GeneEQUAL research team worked together with
- people with intellectual disability
- experts and advisors
- health care workers.
We listened to what people needed
- to make a choice about genetic testing.
Together we made:
More information for health care workers to support shared decision-making.
10 videos about Millie’s genetic health care journey.
Easy Read booklets about
- Millie’s genetic health care journey
and
- making a choice about genetic testing.
A Decision Aid Tool to help make a choice about genetic testing.
We added these new resources to the GeneEQUAL Toolkit.