Webinar: Made Together, Stronger Together
On 10 September, GeneEQUAL launched new resources.
These resources were made together with:
- People with intellectual disability
- Families
- Supporters
- Healthcare professionals
In the webinar, you can
- Learn about the new resources, including our podcast
- Hear from people with lived experience
- Learn how to make healthcare more accessible and inclusive
Watch the recording and learn more about the new GeneEQUAL resources.
GeneEQUAL Podcast
We introduced GeneEQUAL’s new podcast series.
We talked with some of the guests featured in the episodes.
Through their personal stories and experiences, they explore what it means to navigate genetic healthcare, build self-advocacy, find community, and focus on strengths and possibilities.
Stacey Touma
Stacey reflects on her family’s journey following her son’s diagnosis and the importance of connection with others who understand the experience.
“You don’t have to do this alone. Finding your community can make all the difference.”
Emma Bonser
Emma discusses the value of peer support and how families can find information, connection, and confidence when navigating rare and genetic conditions.
“Everyone’s journey is different, but no one should have to navigate it on their own.”
Rachel Callander
Rachel challenges deficit-focused thinking and shares a powerful perspective on disability, language, and what it means to flourish.
“What if we focused on possibility instead of limitation?”
Fiona Lawton
Fiona talks about communication, self-advocacy, and the importance of ensuring every person has the opportunity to be heard and participate in decisions about their healthcare.
“Everyone has something to say, and everyone deserves to be listened to.”