Authors: Iva Strnadová, Michelle Tso, Julie Loblinzk Refalo, Natalie Roberts, Joanne Danker, Skie Sarfaraz, Jackie Boyle, Bronwyn Terril, Celia Halliburton, Claudia Pantoja Mardones, Sarah Hayes, Sam Hurd, Caitlin King, Kristine Barlow-Stewart, Elizabeth Evans, Helen Leonard, Helen Mar Fan, Jonathan Rodgers, Yvette Vella, Julie McGaughran, Stephanie Best, Erin Turbitt, Jackie Leach Scully, Greg Pratt, Elizabeth Palmer.
Our GeneEQUAL protocol paper is now published in BMJ Open.
“Building genetic healthcare together” sets out our three-phase, co-produced plan to make genetic healthcare more inclusive, person-centred and respectful for people with intellectual disability.
Co-researchers with intellectual disability lead the process throughout every step.
It is an open access article, so anyone can read it!
Click here to read the full article:
Building genetic healthcare together: an Australian co-production three-phase mixed-methods research protocol with people with intellectual disability
Click here to read the Easy Read version:
Easy Read Summary Making Genetic Health Care Better For People With Intellectual Disability