Useful links

Policies, charters and frameworks we build our work from  

Government plan: Plan for integrating genomics into NSW Health to enhance disease management and prevention. 

Government plan: Easy Read of the Australian Government’s 10 year plan to support the health of people with intellectual disability. 

National charter: Poster version of Health Care Charter which outlines the rights that people can expect when receiving health care. 

UN Convention on the Rights of Persons with Disabilities which sets out what countries have to do to make sure that disabled people have the same rights as everybody else.     

Government policy: NSW Health policy stating that health care professionals and services must make reasonable adjustments for people with disabilities. 

Government Framework: NSW Health Integrated Trauma-Informed Care Framework: My story, my health, my future : provides a framework and tips for health care professionals to give trauma-informed care. 

Research Guidelines: Easy Read versions of guidelines by University of New South Wales Disability Innovation Institute that discuss practical strategies for undertaking co-designed research with people with disability 

Other resources we like  

Video: Training videos from the Agency for Clinical Innovation about the different care needs for people with intellectual disabilities. 

Blog: A resource-rich blog written by people with disability for people with disability, their loved ones, carers, teachers, and any caring professional. 

Mental health tool: Easy Read online tool created by Black Dog Institute to support the mental health of people with intellectual disability. 

Language guide: Language guide developed by People with Disability Australia to encourage the respectful use of language around disability. 

Communication guide: Practical tips from the Council for Intellectual Disability to ensure people with intellectual disability feel included and listened to in communication. 

Fact sheet: Fact sheet from the Council for Intellectual Disability about what happens at a yearly health check. 

Storysharing tool: A communication tool for people with learning and communication difficulties to remember and share their personal stories.  

Photo story tool: Various photo stories from the Agency for Clinical Innovation showing the steps in common medical procedures such as a blood test. 

Foundation: A non-profit organisation which raises positive awareness of genetic differences. 

Research Article: An article which describes health problems for people with intellectual disability and how to support their access to healthcare.