Informed consent is important in health care for people with intellectual disability

This is an article written by a team of three people, including a co-researcher.

Johnathon Ding and his team read our GeneEQUAL article on informed consent in health care.

Johnathon Ding and his team thought our article was important in improving health care for people with intellectual disability.

Read what Johnathon Ding and his team said about our GeneEQUAL article on informed consent in health care.

Click the link below.

It is up to healthcare professionals to talk to us in a way that we can understand: informed consent processes in people with an intellectual disability

A small story

Hi everyone, 

I just wanted to share a small story that reminded me how important our work is. 

I was working in the Emergency Department. 

A patient came in with foot pain. 

They were a person with intellectual disability. 

He came in with his support worker. 

I used the skills that I have learned through GeneEQUAL. 

I checked we had informed consent from him. 

I tried my best to give him inclusive and accessible healthcare. 

When I discharged him I wrote a discharge summary. 

This is a summary letter to the GP. 

It also has instructions for the patient to help them feel better after coming to hospital. 

I wrote an Easy Read version of the discharge summary. 

When I gave him the Easy Read version, his eyes lit up. 

He said ‘Wow!’ and thanked me. 

I could see him reading the Easy Read summary closely. 

The support worker was also very impressed. 

This made me feel like I had made a difference. 

I hope we can all take inspiration from this story. 

It reminds me how important our work is. 

It has changed how I approach medicine! 

I hope you are having a lovely day, 

Manjekah 

Article on grant funding

UNSW wrote this article about our NHMRC GeneEQUAL grant.

Article on inclusive research

UNSW wrote this article about Iva and Julie’s inclusive research work including the GeneEQUAL project.