Published January 20 2023 in European Journal of Human Genetics

Authors: Iva Strnadová, Julie Loblinzk, Jackie Leach Scully, Joanne Danker, Michelle Tso, Karen-Maia Jackaman, Manjekah Dunn, Sierra Angelina Willow, Skie Sarfaraz, Vanessa Fitzgerald, Jackie Boyle and Elizabeth Emma Palmer

The GeneEQUAL team share how people with intellectual disability have experienced genetic health care. They suggest some ways to make genetic health care better.

The paper is on a website that is seen by health professionals all over the world!

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Published December 9 2021 in Genetics in Medicine

Authors: Iva Strnadová, Suzanne M. Nevin, Jackie Leach Scully and Elizabeth E. Palmer

The GeneEQUAL team looked at what other people said about the experiences of people with intellectual disability who had seen a genetic health care team. 

They found that people with intellectual disability have not been properly listened to.  

This study led us to start the GeneEQUAL project. 

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