Resource type: Featured

GeneEQUAL toolkit

The GeneEQUAL team has made a toolkit for health professionals.

This includes advice on how to do health care that is

  • respectful
  • inclusive and
  • accessible.

The Educational Package was co-designed with people with intellectual disability and health professionals.

It includes  

  1. Advice for health professionals on the Centre for Genetics Education website.
  1. Information on how we made the toolkit.
  1. Our health videos – which show how to do good health care.
  1. Our Easy Read genetics booklets.

Please have a look and share with your health professionals.  

Anyone can also let us know what they think.

We spoke to people with intellectual disability and health care workers.

They told us what they think about the Toolkit.

We listened to them. We then wrote an article about what they said.

If you would like to read the article, click here: Publication: “All doctors should be trained in that”

Download the full toolkit here

PDF file

Teenager sitting on couch with poodle and using a laptop

Our Easy Read Health Booklets

GeneEQUAL co-produced Easy Read booklets  

  • with people with intellectual disability.  

There are 6 booklets 

  1. About genetic health care 
  2. Genes and genetic conditions   
  3. How to make a genetics appointment  
  4. Get ready to go to the genetic clinic  
  5. Tips about genetic health care
  6. What is research? 

We hope they will help people  

  • learn more about genetic health care 
  • decide if they want to go to a genetic clinic  

You can download the booklets for free by clicking each link.  

If you want us to send you a booklet in the post let us know. 

You can find our contact details on our Connect page.

Please share with health professionals you know. Please also ask them to do this quick survey.

You can also let the GeneEQUAL team know what you think.

Cover of booklet 1, called About Genetic Health Care

About genetic health care

This booklet explains what genetic health care is.

Cover of booklet 2, called Genes and Genetic Conditions

Genes and genetic conditions

This booklet explains what genes and genetic conditions are and can be used as part of genetic counselling.

Cover of booklet 3, called Making a Genetic Appointment

Making a genetic appointment

This booklet is designed to help people with intellectual disability and their support people make a genetic clinic appointment.

Cover of booklet 4, called Get Ready to Go to The Genetic Clinic

Get ready to go to the genetic clinic

This booklet can be shared with a person with intellectual disability before a clinic appointment. It has space for including details of the appointment.

Cover of booklet 5, called Tips About Genetic Health Care

Tips about genetic health care

This booklet provides information about genetic clinics, including advice on the difference between public and private clinics and healthcare rights.

Cover of Easy Read flyer called What is Research?

What is research?

This booklet explains what research means.

Our health videos

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The videos show three different genetic health care meetings.  

The videos are pretend  

  • but based on people’s real experiences.
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The first video (Take 1) shows poor practice.  

The health care professionals 

  • use negative words that can make people upset 
  • ignore people with intellectual disability. 

At the end the videos we ask health professionals to think how a person with intellectual disability would feel.  

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The second video (Take 2) shows  

  • respectful,  
  • accessible and  
  • inclusive practice.

In the second video health professionals follow the guidelines from the GeneEQUAL project. 

It shows how happy the person with intellectual disability is when health care is done well. 

It asks health professionals how they may change what they do after watching the video series.  

People with intellectual disability and their support people may like to watch these videos to learn how health care should be.