GeneEQUAL made this decision aid tool.

A decision aid tool helps people make a choice that is right for them.

The decision aid tool can help people decide whether they

• want to

or

• do not want to

get a genetic test.

People with intellectual disability and health care workers can go through it together.

You can look at it

• by yourself
• with a support person
• with a health care worker.

This decision aid tool is part of the GeneEQUAL Choices Project.

It was made together with

• people with intellectual disability
• health care workers
• advisors and experts.

You can follow Millie’s genetic health journey through the Easy Read booklets.

This can help you learn about what a genetic health care journey might look like.

GeneEQUAL co-produced these Easy Read booklets with

• People with intellectual disability
• Health care workers

People with intellectual disability and health care workers can use these booklets to learn about Millie’s genetic testing journey and informed consent.

There are 4 booklets.

1. Millie’s genetic health care story: Before a genetic test.
2. Millie’s genetic health care story: Getting a genetic test.
3. Making a choice about a genetic test.
4. Your own booklet about genetic tests, a decision aid tool.

You can download the booklets for free.

These booklets are part of the GeneEQUAL Choices Project.