News category: GeneEQUAL research

‘They treat you like an it’: people with intellectual disability on seeing medical professionals

The GeneEQUAL team has published an article in The Conversation.

This article is about

  • GeneEQUAL’s last project
  • what people with intellectual disability told us
  • the resources we made
  • the importance of the voice of people with intellectual disability in health care

The Conversation Article Online

PDF file

New study for people with intellectual disability

We want to talk to people with intellectual disability.

We want to talk to them about genetic health care

  • what is good
  • what is bad

We want to make genetic health care better for people with intellectual disability.

Download the flyer below.

PDF file

New study for health care professionals

We want to hear from health care workers.

Tell us what you think about the GeneEQUAL Toolkit.

Our survey (linked to prize draws) is open.

It will close on the 23rd of November 2023.

Scan the QR code for more information

PDF file

A man and a woman at a conference table. The man gives a thumbs-up signal.

New study with families and support worker recruitment

We want to speak to family members and/or support people of children and adults with intellectual disability?

We want to learn about your experiences with genetic health care and health care with people with intellectual disability.

Together we can develop a better model of inclusive, person-centred and respectful genetic health care for people with intellectual disability.

Download the flyer below.

PDF file